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I've got tinnitus, 38 male.

Got it randomly one day this summer.

It's impossible to describe how depressing it is to hear a sound non stop in your ears, night and day, wherever I go or whatever I do, it just never stops.

The brain started filtering it out a bit after months, but it's always there and you're often reminded of it when you're in a slightly more silent environment.

There are days where it becomes especially loud and falling asleep you'd just like to cry or something.

Don't wish it on anybody.

I've had tinnitus for as long as I can remember, so I've never had any negative feelings associated with it. As a kid I just thought it was natural that everyone's ears would ring all the time and would get louder when it was quiet. My ears are ringing right now as I write this.

Then I developed pulsatile tinnitus in my early 30s, which means I can hear my heartbeat in my (right) ear at all hours of the day as well. When I tell people about it, I like to describe it like the heartbeat from Poe's The Tell-Tale Heart.

Developing pulsatile tinnitus really affected my mental health for a while, despite living my whole life with a constant buzzing and ringing in my ears. I couldn't get over the fact that there was now this loud whooshing sound in my right ear, 60+ times per second, and my doctors couldn't even tell me why after several MRIs. I thought I was going crazy, or that I'd developed some kind of brain tumor invisible to scans.

I don't have any great advice except to say that eventually (maybe six months to a year) my brain just adapted to the sound and I hardly ever think of it anymore. It's as much a part of my life as the buzzing and ringing I've had since I was a kid. It can be annoying when I'm trying to listen intently for something (my wife is a birder and it's hard to hear things she points out), but it thankfully doesn't affect my mental health anymore.

I always had problems with sinuses. I've had a few surgeries and while it's better, it's not good either. I literally had a drill up my nose, in my forehead. They still hurt and pop on their own, many times a day.

One day my kid brought a nasty flu from the kindergarten. My otolaryngologist recommended the strongest irrigation stream I can find to clean my sinuses.

Not only did it not help, but it also pushed some goo to the end of my sinuses, which resulted in pulsatile tinnitus.

After about 6 months my kid got sick again, so we all got sick, and I got rid of this tinnitus where I was hearing my heartbeat, by casually blowing my nose. The trick was having a stiff blockage, I guess, so the pressure builds up.

It sounds stupid and probably won't help you, but I wanted to share my story. I had no support from the people close to me and the heartbeat was driving me insane.

I'm sorry you have to go through this. Even though it's not a life-treating condition, it might be a life changing condition (QoL).

That story about your Otolaryngologist is insane. It's sad how many times doctors don't really listen to their patients and throw out there generic advice that is harmful.
You sound like me! I have had sinus issues all my life before 17. I even had a surgery at 16 but I honestly don’t think it helped. Now I have the sinus problem a bit under control, aka I still have occasional infections during allergy and cold season. I use NielMed to wash my sinus and I think it helps a lot. Besides that I really don’t know what it would take to fix it permanently. I constantly can feel the mucus dripping down my throat everyday.
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I've had tinnitus for as long as I can remember, so I've never had any negative feelings associated with it. As a kid I just thought it was natural that everyone's ears would ring all the time and would get louder when it was quiet. My ears are ringing right now as I write this.

I don't know if I have tinnitus. I had strong ringing in my ears every now and then as a kid. I once told a classmate about this, who said I should see a doctor, but I've had it as come up every now and then as long as I can remember.

I now have a continuous beep, but only really hear it when I intentionally tune into it. E.g. I can hear it now because I'm writing about it, but most of the day I simply don't hear it, because I don't tune in to it. Not sure if it was always there or just starting at some age. It is sometimes more present when I'm e.g. sick.

I have no idea if other people have this kind of permanent beep as well, because I never asked anyone.

(I just asked my wife and she doesn't have it.)

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Eye floaters are like that. They don't go away but you get used to them being there.
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I'd say i'm sorry to hear about your 60 beat per second heart rate but by the time you read this you are surely dead. RIP
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I got a high-pitch ringing tinnitus when I was about 18-20. I went from being a person that falls asleep in <5 min to needing at least 1h + needing a background radio/white noise/stream to fall asleep. I sympathize and recognize everything that you reflect on here. I felt kind of "depressed" the first year.

But no matter how cliché it sounds, it does get better with time. The brain does get better and better with filtering it. I also discovered that my tinnitus gets worse with caffeine, stress and lack of sleep. In periods when I live a overall "healthy" lifestyle in respect to sleep, stress, food, working out etc. I forget that I have tinnitus. When I sleep to little and/or when I'm stressed, it comes back full force. I have totally cut out caffeine, which also happened to help with my migraine.

Now ~15 years later I'm in my early thirties and I rarely think about it tbh. However, after a bad cold about 5 years ago I got a secondary tinnitus which is a low-frequency humming. This set me back and cased me some sleepless nights but I have adapted to this as well.

The thing I miss the most is the concept of "total silence". I do envy my fiancé sometimes if we're out in the woods or whatever and I know that she can just relax while "hearing nothing".

Let time do its work and experiment with your body/health to find what makes it lessen. Chances are that de-stressing, sleeping well and eating and working out does make it better.

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My dad had tinnitus and it bothered him relentlessly. He was constantly following potential new treatments, talking to doctors about it, etc.

I have it too. I've taken the approach of truly accepting it: "I will hear these sounds the rest of my life, and I'm truly okay with that". As a result it doesn't give me anxiety or bother me, and I find it helps it fade into the background. The more you focus on it (and let it bother you) the more it stays in the foreground.

I know the advice of "just learn to be okay with it" is easy to communicate but very hard to actually do. I found mindfulness meditation helped me learn to accept things without judgement, including the presence of my tinnitus.

I got it about ten years ago and it drove me absolutely insane for a few months until I just accepted that I would have it. Then a weird thing happened: my brain stopped paying attention to it. Now I mostly only hear it when I think to myself, “do I still have tinnitus?” and try to listen for it. It’s still there, I just don’t care anymore. I had no idea that even what you hear can be such a subjective experience until I went through this, but it makes sense. You do this all the time when you tune out ambient sounds and conversations to focus on something.
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Just wondering do you think you got tinnitus or was it there and you suddenly started noticing? I don't know I got it around 20y ago but I'm honestly unsure if it was one or the other because it became worse and worse the more I started focusing on it. Eventually it subsided. I can still hear it if I listen for it (as I just did now and I can hear a distinct 'bruising' kind of sound) but there's literally months between I even think of it or notice it. There have been studies that lots of 'normal' people notice tinnitus when they enter a sound-proof room. What helped me was just taking long showers - I literally couldn't hear a thing during the shower and some time after. And it seems the 'drown out' period would last longer. And just knowing something would stop it somehow made me ease more into it and maybe reduced the fear that had been programmed into my brain. I also did omega 3 and gingo biloba (just low doses) and felt like it had some effect. Was there any trigger and how 'loud' do you perceive it?
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I'm really sorry to hear that.

I once read something about the prevalence of depression in people with tinnitus. I was surprised by it, but I didn't really consider how disruptive it must be when you're accustomed to not having it. By contrast, I've had it basically my whole life. I remember laying awake at night, listening to the deafening ringing, thinking about how weird it was that silence isn't silent. It wasn't until later that I knew my experience isn't the norm.

I'd love to have a treatment or cure. Especially for folks like you that truly suffer from it.

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You'll get used to it. 42 male here. Started at 12-13 years of age. Barely notice it anymore. Some things (lack of sleep, extreme stress, some medicines/drugs) accentuate it a bit, but it's annoying at best, not interfering. I also produce music, so I don't think it has affected my hearing. So you'll be good. Stop worrying.

Oh, use a fan based white noise machine (or a loud fan) during sleeping, really drowns it out.

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Also got tinnitus here. Woke up with it about 5 years ago. I'd recently had COVID and was also on a strong medication. But I've been a lifelong insomniac so this article has me wondering.

I can only sleep when there's another noise in the room for frame of reference, otherwise the tinnitus feels like the loudest sound in the universe. My current solution is an air purifier on its audible middle setting (basically white noise with a use), and a humidifier in winter.

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Avoid complete silence (a bit of white noise or other background sound helps to mask it for some people), and try to avoid threads like this. Anything that makes me actively think about tinnitus is the absolute worst trigger, suddenly making it seem really loud after barely noticing it for weeks/months.

The brain definitely seems to get better at filtering it out over months/years though, at least until something makes you focus on it

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Don't worry: you will get used to it in a couple years and won't even notice it.
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I don't have tinnitus, but I live about a mile from a major highway. Depending on the time of day, the wind, the temperature, etc, it can carry the road noise directly to my yard. It doesn't bother my wife or my kids, but I hate it.

When it gets to be too much, though, I can just go inside, and that's not something that you can do with tinnitus.

I'm sorry that you're going through that, that must be terrible. Have you tried adding white noise?

I've had it for a few years now. One time I got a throat infection and it amplified to a slightly louder volume. It went down to its original level a few months later, but the time when it was slightly louder was scarier than when it first appeared. I was worried it was going to keep increasing.
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I'm on the exact same boat. Same age and got it randomly this Summer. Are you able to modulate the pitch by moving your jaw sideways or wide opening it? Would be great to bounce off some ideas. I'll drop you an email if that's OK.
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Same thing here , but triggered by tiredness/stress. If I sleep a lot and well, then it somehow fades until I’m tired again.

I assume my brain is somehow able to filter it out, unless it’s too tired/busy.

I've had tinnitus longer than I can remember (33m) and I also have moderate visual snow also as long as I can remember. Sadly, I have no tips on tuning it out, but I'd do anything for a cure
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A lot of people hear a slight hiss. Is that tinnitus? Faint enough that it's not noticable 90% of the time.
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i have it for more than 12 years. 8 years ago, I began to dont give a f“““ anymore. I now can go days and weeks without hearing it. Even when reading in silence. Sometimes, when my brain decides to losten to it again, I immediately start to distract myself. Sometimes for hours, until „I forget“
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It gets better,I promise. It becomes an annoying companion,but you develop ways to forget about it
Don’t let it get to you like this.
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I have had it since I was 13 (60 now). The base noise is filtered out unless I listen for it, but ion occasion I get a temporary deafness, followed by almost a popping sound, then a LOUD tinnitus at a different frequency which slowly fades.

Sometimes I get a new frequency. Since 2000 it has gotten worse, since 2020, much worse. But changing my environment seems to effect it for better and worse.

No doubt mine is connected to my mental illness and probably temporal lobe seizures.

Fellow tinnitus haver here.

The worst thing you can do is fixate on it. To avoid that, you want to make it so that you never hear it. Play some noise whenever you need it especially when sleeping. Then, over time, learn to accept it. And then the craziest thing happens: it does actually get better. You don’t just get used to it, it actually improves. It’s a profound connection of mind and body.

Got it similarly. 7-8 years ago. Probably from ANC. It used to feel loud, now I have to remind myself to hear it. There is light at the end of the tunnel.
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I wont call it anecdotal evidence but i am told, in "traditional" Greek medicine,tinnitus is a symptom of constipation.

Its told you fix constipation, your ringing ears will get fixed.

I know its not 100% but try to fix your bowel movement if it isn't working properly already.

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